I do not know what will come next. We are afraid of the next.
Larry's chemo treatment of Folfox went fine until 6pm last night. Vomiting for 5 hours. I believe he lost an entire weeks of food from the amount of the cleanup. He was also awake ALL night with intense nausea. He cannot sit still from the steroid. Last treatment he welcomed all the energy. This time he is unable to sleep and can't stop talking. Is even talking to himself and the dog when I am not in the room.
I was on the phone with the oncology Dr at midnight asking for some meds that he could take sublingual. At Walgreens at 1am waiting in line. He had none of THIS the first time around. He has not vomited since he started the new sublingual med but is very nauseous and cannot eat or drink anything. Larry and I had discussed that he will not return to the hospital unless I am not able to handle the situation. I do not want him exposed to any more infections or unnecessary antibiotics.
Last nights Oncologist and this morning received a call from a different Dr(our Dr. is away for 2 days) wanting me to take him to the hospital. They must think I am mean but I told them both-No way! I agreed that he was probably dehydrated and needed an IV fluid. I told them that I wanted him to have it in the Cancer Center and then return home. I do understand their reluctancy. I also asked them to set it up with home health to teach me how to give it but they said they could not do that since I was not a nurse. Hmmm-I could give him a potent antibiotic but cannot give him fluids??
I am not handling this very well today. Just numb and don't want to move. Larry is now getting his IV hydration at the Cancer Center-yes they finally agreed. I dropped him off and came back home. First time I have not been with him. Just hoping they don't admit him.
As I said, we are afraid of the next.
I worried when we didn't hear from you since Monday. OMG, you poor folks. Where you are getting your strength from is amazing. Good for you standing up to those docs. Chemo is insane - one treatment one reaction; second treatment the opposite. I know hydration will make him feel better. If he had an IV port would they allow you to give fluids? WHAT CAN I DO FOR YOU?!?!?!?
ReplyDeleteA message to Larry from India (sent via Arup Varma)
ReplyDeleteThanks to your constant bugging that we only won 3 medals in Beijing, we doubled our tally to 6 .. a 100% jump .. we are going for 12 in Rio .. wait and see!! :-)