Larry is still very tired but we have planned to take a walk in the morning and evening every day. He has edema. His feet and bottom legs are 3 times the size they normally are. Going to contact a Dr(hmm which one?) tomorrow to get a script to get him fitted for compression stockings for his legs and feet. For some reason the lymph fluid is not flowing like it should. I know a lot about this from my own lymphadema. Yet everyone is different and will need to get more info for him. Darn, wish I had learned the lymph drain in HT.
When I had talked to the Dr's they told me this was normal. Obviously he has a blockage somewhere that is keeping the lymph from flowing the way it should. I will need a better explanation-here I go again.
I am kept very busy with everything that needs to be done. His med schedule is very complex. I prepared a list by time of day for every med, supplement etc. Otherwise we would both be confused. His daily antibiotic regimen also became much more complex.
I got a big surprise when the meds arrived 2 days ago with an IV pole. We both became a little nervous about that one! Giving him a shot of a med into his picc line is one thing, having to set up an IV, another. I was taught by the home health nurse how to give him a 30-40 minute IV infusion. Funny how you do what you need to. Not sure how I lost the nervousness but thankful I did.
Tomorrow Larry is going to make a chart of his walking, attempt at light weights, stretching and deep breathing exercises. Hopefully that will make him feel better. I asked him to do this for himself but it may be too soon to implement.
Since his computer got fried from our last storm, I will need to send our son out tomorrow to get a new CPU for him. It was very difficult today for him to try to grade the 60 essay and 40 problem homework assignments online. He has a 27" monitor, so it should be a little easier once he gets his own computer running. He calls my monitor scrawny.
He is continuing to lose weight. I am preparing shakes and smoothies but his tolerance is only about 4oz at a time. He seems to be eating better but as before, it is going right through. I do worry that he is not absorbing any nutrition. Today he was walking and his wedding ring fell right off of his finger. I will look for a chain so he can wear it around his neck. If anyone has any other ideas about this one please let me know.
Thanks again to everyone who has sent cards, messaged and called with encouragement. Love, Melody
