Larry had decided a few months ago that he did not want a feeding tube. He put this in his directives.
Yesterday, prior to his procedure the GI Dr. explained what he thought he might find but was not sure until he got back in. He believed that Larry had more blockages beyond the stent placement of last Friday(why wasn't this found during the original EGD?). He also felt that the organ fluids that are generated from the stomach, liver and pancreas were not being absorbed by the body any longer because of the malnutrition. Normally these fluids go back into our tissues.
He discussed with us that a feeding tube could be inserted into Larry's stomach. Not just for feeding but to drain the accumulated fluid no longer being absorbed by his body. He could also burp the tube whenever he felt nauseous. Larry immediately agreed stating that he would do anything to feel more comfortable and no longer vomit. I asked him twice if he was sure. He said that he was allowed to change his mind. I agreed and told him he can always change his mind whenever he feels the need.
The procedure ended up being 2 hrs long, much longer than the first one. When his Dr came to talk to us he had taken the time to draw a diagram of what he had done. There were 2 additional blockages beyond the original stent. Within just a few days of placement of the original stent there was also tissue in-growth that was squeezing the original stent and causing a small narrowing. He ended up having to reinforce the original stent with another and do the same with the other blockages so that all 5 stents were overlapping. He used a dye to make sure that the remaining portion of the duodenum was clear.
He also discussed that Larry will probably only be able to tolerate liquids for awhile. He said that things could improve so his digestive system may handle some very soft foods like applesauce and mashed potatoes. This hit Larry very hard. The realization that you can never again have solid foods is very difficult. I reminded him that my Sister, Donna tolerated that for a long time and so could he.
The general anesthesia left him with memory issues. When he saw the tube coming out of his stomach he was upset and angry that it was there. I kept reminding him that it was his decision and that he had signed a form agreeing to it before the procedure.
Larry is now on pain meds for the first time. He has never taken them before and loves that he is sleeping and feels ok with no nausea or vomiting. I will read the booklet and figure out how to drain the stomach tube later today. We also have home health care and could call someone out to show me. It is complicated because the home health care is through the original Dr and hospital. I will figure this all out today or tomorrow.
I have been following your blog. My family lost a friend to the same. He had no family so we did much of the things you have had to deal with. Here are a few things that might help. Stage one baby food, Roy liked the fruits, at least it gave him some taste variety. You can also use a food emulsifier, not a blender, the blender leaves those small parts the doctor warned you about. You can find emulsifiers on line, chef supplies is a place to start. I will continue to follow your blog, Melody, you are doing a great job. This IS the hardest part of your married life, but don't forget to get mad and cry, I had my cry every day in the shower.
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